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Family reveal how Lichfield charity has delivered “life-changing care” to three-year-old boy

The family of a three-year-old boy living with a rare medical condition have revealed how a Lichfield charity has provided “life-changing care”.

Lincoln King

Lincoln King

Lincoln King has Primary Lymphoedema, a painful swelling of the tissues which can lead to a loss of mobility.

Since he was one, the youngster from Rugby has been travelling to a clinic held at St Giles Hospice in Whittington.

His mum Keylie, speaking during Lymphoedema Awareness Week, said the condition had left doctors fearing her son may never walk or even be able to wear a pair of shoes.

“We were told during a routine 20-week scan that our unborn baby had Lymphoedema,” she said. “At that point the doctors couldn’t determine how debilitating it would be and whether or not our baby would have any other disabilities.”

Lincoln’s dad Chris added: “We’ve been visiting the clinic at Whittington for two years now under the care of Lymphoedema nurse Helen Young. With little or no help from the NHS, we have always been so grateful to Helen – she has become an invaluable part of Lincoln’s life over the past two years.

“It is thanks to her demonstrating the correct technique of manual lymphatic drainage to us that Lincoln was able to be sized and fitted for compression garments when he was two years old – which prevented further swelling to his feet and lower limbs.”

Manual lymphatic drainage is a type of massage which encourages the natural drainage of fluid.

Lincoln King

Lincoln King

Keylie said: “Lincoln had always relied on the use of custom-made boots because we had never been able to successfully find a shoe that would fit his feet, but over the Christmas period last year we did what every other parent takes for granted – we walked into a shoe store and chose a pair of shoes that fit our little boy.

“Lincoln has a number of other conditions which affect his day-to-day life including Neuronal Migration Disorder, Polymicrogyria, Left Hemiparesis, Microcephaly, Developmental Delay, so something we relish each and every day is that Lincoln doesn’t just walk, he runs!

“He also conquered an enormous milestone by taking steps and walking unaided at the age of 22 months, something we never could have imagined. We couldn’t be prouder of him and we could never be more grateful for the pure compassion that the staff at St Giles have shown to our family in the last few months.”

The family is currently fundraising for a PhysioPod which helps manage Lincoln’s condition at home. People can donate online.

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Founder of LichfieldLive and editor of the site.