A Burntwood mum whose daughter has been diagnosed with a life-limiting rare brain disease will take part in a daredevil skydive to raise awareness of the disease.
Helen Gater’s seven-month old daughter Olivia-May was diagnosed with Canavan Disease in November 2019.
The condition – which affects the nervous system – means her life expectancy is just 10 years.
Helen said she was determined to help find a cure.
“Eventually, Olivia-May will be paralysed. She won’t ever be able to walk, talk, and at some stage she will become deaf and blind and will need a feeding tube.
“I’m wanting to raise awareness and raise money for charity. Unfortunately, it won’t help find a cure for my little princess, but it might help other children and families in the future to find a cure.”Helen Gater
People can donate to her fundraising via Helen’s GoFundMe page.