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# Burntwood mum to take on skydive challenge after daughter's life limiting brain disease diagnosis
- URL: https://lichfieldlive.co.uk/burntwood-mum-to-take-on-skydive-challenge-after-daughters-life-limiting-brain-disease-diagnosis/
- Published: 2020-01-23T16:15:00.000Z
- Updated: 2020-01-28T11:35:00.000Z
- Description: A Burntwood mum whose daughter has been diagnosed with a life-limiting rare brain disease will take part in a daredevil skydive to raise awareness of the disease.
- Author: Lichfield Live
- Tags: Burntwood, Charity, #wp, #wp-post, #Import 2026-07-22 18:18, News

A Burntwood mum whose daughter has been diagnosed with a life-limiting rare brain disease will take part in a daredevil skydive to raise awareness of the disease.

Helen Gater’s seven-month old daughter Olivia-May was diagnosed with [Canavan Disease](http://www.canavanfoundation.org/about%5Fcanavan%5Fdisease?ref=lichfieldlive.co.uk) in November 2019.

The condition – which affects the nervous system – means her life expectancy is just 10 years.

![Helen Gater with her daughter Olivia-May](https://storage.ghost.io/c/e3/90/e390c3da-0866-4d2a-8ffe-ca4999d7ce1c/content/images/lichfieldlive-co-uk/wp-content/uploads/2020/01/helen-1.jpg)

Helen Gater with her daughter Olivia-May

Helen said she was determined to help find a cure.

> “Eventually, Olivia-May will be paralysed. She won’t ever be able to walk, talk, and at some stage she will become deaf and blind and will need a feeding tube.  
>  
> “I’m wanting to raise awareness and raise money for charity. Unfortunately, it won’t help find a cure for my little princess, but it might help other children and families in the future to find a cure.”  
>  
> Helen Gater

People can donate to her fundraising via [Helen’s GoFundMe page](https://www.gofundme.com/f/sponsored-skydive-for-canavans-disease?utm%5Fmedium=referral&utm%5Fsource=unknown&utm%5Fcampaign=comms%5Fynlm+sponsored-skydive-for-canavans-disease).